ERN-EYE has been funded to build the basic registry for rare eye diseases named: REDgistry.
The proposal submitted in September 2019 has received the positive reply from the European Commission end of January 2020. The importance for patients and research is huge and it is a very good step forward.
We are now working hard to build it up and make it real for patients and experts!
It will be of course a topic of high importance for the future of the network and its implementation will be extensively debated our next meeting in October.
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